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Posts Tagged "human subjects research"

Doing Good Science

Grappling with the angry-making history of human subjects research, because we need to.

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Teaching about the history of scientific research with human subjects bums me out. Indeed, I get fairly regular indications from students in my “Ethics in Science” course that reading about and discussing the Nazi medical experiments and the U.S. Public Health Service’s Tuskegee syphilis experiment leaves them feeling grumpy, too. Their grumpiness varies a bit [...]

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Doing Good Science

Some thoughts about human subjects research in the wake of Facebook’s massive experiment.

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You can read the study itself here, plus a very comprehensive discussion of reactions to the study here. 1. If you intend to publish your research in a peer-reviewed scientific journal, you are expected to have conducted that research with the appropriate ethical oversight. Indeed, the submission process usually involves explicitly affirming that you have [...]

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Doing Good Science

How to be ethical while getting the public involved in your science

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At ScienceOnline Together later this week, Holly Menninger will be moderating a session on “Ethics, Genomics, and Public Involvement in Science”. Because the ethical (and epistemic) dimensions of “citizen science” have been on my mind for a while now, in this post I share some very broad, pre-conference thoughts on the subject. Ethics is a [...]

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Doing Good Science

Ethical and practical issues for uBiome to keep working on.

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Earlier this week, the Scientific American Guest Blog hosted a post by Jessica Richman and Zachary Apte, two members of the team at uBiome, a crowdfunded citizen science start-up. Back in February, as uBiome was in the middle of its crowdfunding drive, a number of bloggers (including me) voiced worries that some of the ethical [...]

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